Thank you!!!

Click on the link to watch our friends surprise us by coming to Texas. 

http://youtu.be/lxYMk4p23Xw

Post Fontan: Day 2

Stockton was waking up a little bit more than we wanted and he would whimper in pain. They continue to give him small amounts of morphine but need to be careful not to give too much or his breathing could become affected. This morning Dr. McKenzie rounded and said that things look good. They may move us to the step down unit. They are going to take out his pacing wires today and some of his lines. He has an iv in his ankle that they want to keep but it is bothering him. They said that it can be a battle to walk with an iv in your ankle so we hope Stockton will get up some time today. He sat up this morning at 6:30am and took a drink of water. He wanted to hold it. Last night when he would wake up he would yell, "I want to watch a movie!" That made us giggle but definitely the sedation talking. He looks comfortable and he is on 3 Liters of oxygen via nasal cannula now. His chest tubes will be the biggest battle we fight over the next couple of weeks. After the Fontan they drain for quite a bit of time. He looks comfortable and so handsome. He has been such a trooper. We are grateful for the prayers and words of encouragement. We sure love this boy and we find so much power in his strength.

Fontan Procedure

When we spoke with Dr. McKenzie this afternoon he brought up a couple things. In the cath procedure his pulmonary artery was a little stenotic. This was not the case when McKenzie went in through his chest. There was a chance that he was going to repair it but he said it looked fine. He said the pulmonary artery is usually 9.5mm. Stockton's is 9mm. He said that it would be fine. Dr. McKenzie was able to place the biggest conduit and I am waiting to hear exactly what size that was. He said his oxygen looks good and that Stockton's body really likes being at sea level. (This kind of broke my heart.) As we will have to wait and see what Stockton's body does when we are back in Utah. Dr. McKenzie also said that because of our elevation that Stockton may have more collaterals than we think. These can upset the circulation to his heart. Stockton was able to be extubated after surgery. (He didn't come out with a breathing tube.) He has 3 chest tubes, pacing wires, an iv, arterial line, central central line, on 6 liters of oxygen via face mask, he has morphine going very slowly, ancef (an antibiotic) and he also has some heparin dripping very slowly in each line. He had some weird heart rhythms in surgery that were affecting his AV and SA node. I need to read more about them so I can explain them to you. We will continue to wait by his bed side and see what his body does. They will start to wean his anesthesia over the next 24 hours. We will update when we can. 

We are with him.

We are with him now. He is resting. They were able to extubate him in the OR. They said he looks great. His blood is a little thin and we are trying to work on that.

Update 4

Dr. McKenzie just came and talked to us. Stockton did very well. He spoke to us a lot about collaterals, our elevation and many other things. We hope to see Stockton in about an hour.

Update 3

The Fontan is finished! They are sewing him up now.

Update 2

They have cracked his chest and working on getting through all of his scar tissue. He is doing great!