To Fontan or not to Fontan?

Our sweet baby boy goes through so much and we try to do the best that we know how. At our visit in December our cardiologist said we should plan for open heart surgery late summer of 2014. This actually was the whole purpose we decided to have another baby so quickly. We wanted Merrick to be old enough to stay with family and we didn't want to be pregnant this summer. Well, I called Texas Children's Hospital yesterday to schedule Stockton's heart cath this April. We have been anticipating to spend a lot of money on lodging and getting ready for this trip. We were moving to Texas in August for at least a month and we were going to home school our daughter, Tylee, for the first part of the school year. Planning is something heart families thrive on yet something always throws us for a loop. Dr. McKenzie, our surgeon, had his office contact us today and tell us  that they want to put Stockton's surgery on hold. I was thinking maybe a couple months but then they told us they wanted to wait another year! They want to wait until after he turns four and try for September 2015?! I was at a loss for words, which doesn't happen often, then the anxiety sank in. Before I even told my husband I called my go-to heart Mom, Jessica. She was shocked to. When I asked them why they wanted to wait they said that he is doing so well that his heart pressures will be more stable the more weight he gains and the older he gets. I immediately called Dr. Ocampo and asked her why they went this route. I had so many questions for her and because Stockton is healthy they felt like it would benefit him if we waited. Seth and I never felt comfortable about making this huge decision and we are glad the doctors have made this decision for us. We just have to rearrange our lives, again, so we can accommodate our sweet boy. I don't want anyone to think that I am not grateful for Stockton, but when health issues arise out of the blue we become very concerned. I have dreams about Stockton having emergency surgery and we are stuck in Utah and we have to take an angel flight to Texas. Utah has great medicine but nothing compared to Texas. They are an elite facility and they have saved our baby boy's life so many times. So yes, Stockton is healthy and he is trucking along. So what now? Well, we are in the process of getting a second opinion and maybe even a third. We have lifelines through Atlanta Children's and Cincinnati Children's that we are going to explore. We want to see what these facilities have to say about Stockton and get their input. For now we are still in the waiting game. We will just keep on loving him and praying that his heart stays strong.