Thursday, August 25, 2011
DAY 27
I can't believe that this Saturday marks 4 weeks that we have been in the hospital. I have to tell you that the last few weeks have just blended together in a daze. Sometimes I don't even know what day it is. Stockton is improving with his eating habits and seems to be on a bit of a schedule. He has maxed out at 61cc but continues to remain in the mid 40's. We came into the hospital with two other hypoplastic left heart babies and they have done really well. One of them has only been here 3 weeks and he was discharged today. We are so happy for their family and we hope to keep in touch with them. Stockton was a little fussy last night but has seemed to catch up on his sleep this morning. He is only waking up to eat every 3 hours. Stockton's acid reflux medicine has seemed to really help. THANK HEAVEN! The poor little guy was just getting too upset after eating. This morning he pulled out his NG tube, again, and they replaced it. The doctors are going to take it out tomorrow permanently. YEAH! Our mornings are quite busy and sometimes they can get a little draining. Today we had visits from just about every person in the hospital: occupational therapy, x-ray team, the Attending Physician, our nurse practitioner, the phlebotomist among many others. Mornings are so draining but it's nice to know there is end in sight! Hurray Stockton!
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I am loving the updates!! I am hoping you get to go home soon and be a little family together at home. WOW, I am surprised there are 2 other babies at the same time with that condition, you must be at the right hospital to take care of him.
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I'm so glad the medicine is helping! He deserves a break, and so do ya'll!
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