Post Fontan: Day 3

I will just start adding time stamps to posts so we can get everyone updated.

3:00pm: They still don't have room for him on the step down unit. It has been hard because we have a hard time staying with him all night because we are so tired. The last two nights we have stayed at the Ronald McDonald house. We have been trying to take shifts so we don't over exert ourselves. Our friends, Bobbi and Steve, left this afternoon. It was so nice of them to fly here and surprise us so we weren't alone. We are forever in debt to them and all of those who have helped us. This afternoon we got Stockton up to stand and try to use the commode. He hated it. He likes sitting up and wants to stand. I worry about him getting constipated. His personality is a little hidden right now. Stockton almost seems a little depressed. We are trying to brighten his spirits and make him smile. We have yet to get a laugh out of him. He misses his siblings and so do we. The doctors took out his middle chest tube so he only has 2 now. The tubes are no longer hooked to the suction devices on the floor and he has suction bulbs that are easier for him. He is down to 1 Liter of oxygen with SATs in the high 90's. He wants to old our hands all day long. We are impressed at his progress and we hope to lift his spirits and get a laugh today.

7:30pm: He has stood up a couple times today but he just took a whole lap around the CVICU. I think he hated it but he did such a good job. They haven't rounded tonight so I don't know of any new plans. Stockton is taking naps every hour then wakes up in a good mood but it doesn't last long. He is having a lot of discomfort when they strip his chest tubes. He starts to cry and scream.  

http://youtu.be/qhkihsF1Gmo

8:30pm: My two guys are tired.