Post Fontan: Day 5

2:50pm: Stockton continues to be a trooper. We have been keeping him busy with TV shows and toys. He is still not himself. When anyone comes in he says, "I hate this place, no pokes!" It's hard to hear. His chest tubes continue to drain. He still needs to eat and drink more. We hope to hit his goal today. He still hasn't gone #2 and I worry about that. He has dark circles under his eyes and was a little low on some labs today. Hopefully his spirits come up today because we brought him a carpet and he can play with his train tracks. He hasn't talked much but since we brought the trains up he is more happy. He currently gets Toradol every 6 hours to help with his pain, it got bad there for awhile. 

Thank you to everyone that has sent us a postcard through Texas Children's. We love all the messages. Keep them coming! Use this link to send him one:

http://www.texaschildrens.org/Support-a-Patient/Greeting-Cards/

9:18pm: The carpet and trains have done wonders for our little man's spirit. He has started talking to us more and giggling a little while watching movies. Thomas the Train has been great for him. (Little does he know that I found a pack of 6 on sale for $32! He can open one each day this week. He did really well today when we had to strip his tubes. I went to Target tonight to get him some fresh fruit and food that I know he will eat. The food here is next to awful, honestly. I wouldn't want to eat it either. Hopefully he will do better eating tomorrow. He made big progress today.

Also, my husband and I celebrated 9 years of marriage today. I am so grateful for him and this journey that we can share. It's hard to believe that I met my soulmate in 2003 at just 19 years old. Crazy! He is a wonderful father to our children and he is so patient with Stockton. Stockton only want him when they are poking him or giving mess. Seth is such a comfort to him and myself. Love you sweetheart.